Everyone Needs Support

Janey (She/Her) –

Already a dedicated mother, Janey was thrust into an entirely new world of parenting when Lucy was born.

With a rare neurological disorder, Janey found herself researching at the rate Lucy’s medical team was, knowing the only way to ensure Lucy was getting the very best care was to know as much about her disorder as her medical team minus the PhD.

With this process, she has become an advocate, always fighting for what is best for Lucy. When Lucy’s medical team would tell her she can’t, or Lucy won’t, Janey has created a way so that she can, and ensure Lucy has the tools because she will!

Lucy’s development and progress is a testament to her unwillingness to succumb to her disorder, but none of it would have been possible without Janey advocating for every opportunity to move those mountains.

With Advocacy as a passion, education and resources for parent’s and family’s is equal to her mission. There is not a demographic that Janey is unwilling to help. From parents to the patient to the community she is a message away to help you navigate the next steps.

Caity is the rationale and sounding board when the going gets tough.

Caity is always there to take over to comfort both Lucy and Janey during the scary, or icky parts of this medical process.

Her ability to analyze every angle and possibility to a situation has not only helped Janey and Lucy but all of those around her.

Caity has dedicated the same equal time and effort to our cause and mission from the ground up ensuring no stone goes unturned.

Diligently researching and helping Janey find every way to make the Impossible, Possible.

Caity she can serve as a sounding board and confidant to those in similar situations whether it be parents, family friends, family members or community members.