Where the Impossible is Possible

Hemimegalencephaly Foundation

   Lucy’s Warrior’s (Humans with rare disorders and their family members) deserve the chance at the best life possible. We aim to do the same for others as we were gifted with so much at the start of our journey. Pay it Forward.

 

Lucy's StoryMake A Donation

Where the Impossible is Possible

Hemimegalencephaly Foundation

   Lucy’s Warrior’s (Humans with rare disorders and their family members) deserve the chance at the best life possible. We aim to do the same for others as we were gifted with so much at the start of our journey. Pay it Forward.

 

Lucy's StoryMake A Donation
About Us

Our Story & Mission

Our daughter Lucy was born May (2019) and she was born with a rare neurological disorder that causes severe life threatening seizures. Her particular disorder is so rare that we are only aware of approximately a few hundred other children world wide with it. Lucy is only one of a few that is without full symptoms and this has given me so much hope.

I hope to advocate in all the ways possible for as many kids possible in Colorado. My dream is to make this a Nation Wide Nonprofit. For now we are serving families here in Colorado. We were turned away from the hospitals while she was visibly seizing and told she was fine. They said it was “normal” and to be honest Lucy’s diagnosis has been terrifying and hard on our family as a whole including her siblings. Especially the older siblings. I truly believe there is a reason Lucy chose us. We don’t want to just help her. We want to reach and help so many others.

About Us

Our Story & Mission

Our daughter Lucy was born May (2019) and she was born with a rare neurological disorder that causes severe life threatening seizures. Her particular disorder is so rare that we are only aware of approximately a few hundred other children world wide with it. Lucy is only one of a few that is without full symptoms and this has given me so much hope.

I hope to advocate in all the ways possible for as many kids possible in Colorado. My dream is to make this a Nation Wide Nonprofit. For now we are serving families here in Colorado. We were turned away from the hospitals while she was visibly seizing and told she was fine. They said it was “normal” and to be honest Lucy’s diagnosis has been terrifying and hard on our family as a whole including her siblings. Especially the older siblings. I truly believe there is a reason Lucy chose us. We don’t want to just help her. We want to reach and help so many others.

Read Our

Latest Posts

February 16th Lucy Update

February 16th Lucy Update

The Power of Advocacy: How Janey Made the Impossible Happen for Lucy Good day Everyone, Caitlyn here, and I'm thrilled to update you on Lucy's incredible journey. It's been a month since we left the hospital, and the progress Lucy has made is nothing short of...

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Epilepsy Awareness Day 2024

Epilepsy Awareness Day 2024

Shining a Light on Epilepsy Awareness Day: A Tribute to Our Epilepsy Family Hello everyone, Today marks an important day in the calendar for our epilepsy community: International Epilepsy Awareness Day. It's a day dedicated to raising awareness, providing support, and...

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About Us

Read about Lucy’s story and find out more about Lucy’s Warriors and our mission.

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FAQ & Information

Learn about Hemimegalencephaly and find the resources you need.

Become A Volunteer

Lucy’s nonprofit is always looking for volunteers to help with a variety of tasks. If you’re passionate about our cause and want to volunteer your time and skills, wed love to hear from you. Please contact us today!

Looking for Resources

It’s important to have reliable resources to turn to for information & support. That’s why we’ve compiled a list of resources that we recommend. We’ll continue to update this list, so be sure to check back often.