Feb 19, 2024 | Lucy’s Updates
The Power of Advocacy: How Janey Made the Impossible Happen for Lucy Good day Everyone, Caitlyn here, and I’m thrilled to update you on Lucy’s incredible journey. It’s been a month since we left the hospital, and the progress Lucy has made is nothing...
Feb 12, 2024 | Lucy’s Updates
Shining a Light on Epilepsy Awareness Day: A Tribute to Our Epilepsy Family Hello everyone, Today marks an important day in the calendar for our epilepsy community: International Epilepsy Awareness Day. It’s a day dedicated to raising awareness, providing...
Jul 20, 2022 | Lucy’s Updates
Lucy’s Hemimegalencephaly Journey: Supporting Rare Warriors Through Swag Dear friends and family, We’ve been overwhelmed by the outpouring of support and inquiries about Lucy’s Hemimegalencephaly Journey “Swag.” We’re thrilled to announce...
Jun 20, 2019 | Lucy’s Updates
“Otherwise, I’ll fall apart. I’m going to fall apart. I am falling apart.” ― Tabitha Suzuma, Forbidden And just like that our world completely changed. One day the pieces will come back together. For now, meet Lo. You will learn in a different post why she is...
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