February 16th Lucy Update

February 16th Lucy Update

The Power of Advocacy: How Janey Made the Impossible Happen for Lucy Good day Everyone, Caitlyn here, and I’m thrilled to update you on Lucy’s incredible journey. It’s been a month since we left the hospital, and the progress Lucy has made is nothing...
Epilepsy Awareness Day 2024

Epilepsy Awareness Day 2024

Shining a Light on Epilepsy Awareness Day: A Tribute to Our Epilepsy Family Hello everyone, Today marks an important day in the calendar for our epilepsy community: International Epilepsy Awareness Day. It’s a day dedicated to raising awareness, providing...
Swag Update

Swag Update

Lucy’s Hemimegalencephaly Journey: Supporting Rare Warriors Through Swag Dear friends and family, We’ve been overwhelmed by the outpouring of support and inquiries about Lucy’s Hemimegalencephaly Journey “Swag.” We’re thrilled to announce...
Lucy’s First Blog

Lucy’s First Blog

“Otherwise, I’ll fall apart. I’m going to fall apart. I am falling apart.” ― Tabitha Suzuma, Forbidden And just like that our world completely changed. One day the pieces will come back together. For now, meet Lo. You will learn in a different post why she is...
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