Where the Impossible is Possible
Hemimegalencephaly FoundationLucy’s Warrior’s (Parents & Children with Epilepsy and/or rare disorders ages eight & Under) deserve the chance at the best life possible. We aim to do the same for others as we were gifted with so much at the start of our journey. Pay it Forward.
About Us
Our Story & Mission
Our daughter Lucy was born May (2019) and she was born with a rare neurological disorder that causes severe life threatening seizures. Her particular disorder is so rare that we are only aware of approximately a few hundred other children world wide with it. Lucy is only one of a few that is without full symptoms and this has given me so much hope.
I hope to advocate in all the ways possible for as many kids possible in Colorado. My dream is to make this a Nation Wide Nonprofit. For now we are serving families here in Colorado. We were turned away from the hospitals while she was visibly seizing and told she was fine. They said it was “normal” and to be honest Lucy’s diagnosis has been terrifying and hard on our family as a whole including her siblings. Especially the older siblings. I truly believe there is a reason Lucy chose us. We don’t want to just help her. We want to reach and help so many others.
Read Our
Latest Posts
“Sometimes the things we can’t change end up changing us.”
“Sometimes the things we can’t change end up changing us.” ― Unknown August 22, 2022 Moving to Colorado Springs from a small town in Illinois was a huge life change that was super exciting but nerve wracking all at the same time. I did not have a job lined up yet and...
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Lucy’s First Blog
“Otherwise, I’ll fall apart. I’m going to fall apart. I am falling apart.” ― Tabitha Suzuma, Forbidden And just like that our world completely changed. One day the pieces will come back together. For now, meet Lo. You will learn in a different post why she is...
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What We Do
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Nominate Recipient
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Donate & Shop
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FAQ & Information
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Become A Volunteer
Lucys nonprofit is always looking for volunteers to help with a variety of tasks. If you’re passionate about our cause and want to volunteer your time and skills, wed love to hear from you. Please contact us today!
Looking for Resources
It’s important to have reliable resources to turn to for information & support. That’s why we’ve compiled a list of resources that we recommend. We’ll continue to update this list, so be sure to check back often.