Where the Impossible is Possible

Hemimegalencephaly Foundation

Lucy’s Warrior’s (Humans with rare disorders and their family members) deserve the chance at the best life possible. We aim to do the same for others as we were gifted with so much at the start of our journey. Pay it Forward.

 

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About Us

Our Story & Mission

Our daughter Lucy was born May (2019) and she was born with a rare neurological disorder that causes severe life threatening seizures. Her particular disorder is so rare that we are only aware of approximately a few hundred other children world wide with it. Lucy is only one of a few that is without full symptoms and this has given me so much hope.

I hope to advocate in all the ways possible for as many kids possible in Colorado. My dream is to make this a Nation Wide Nonprofit. For now we are serving families here in Colorado. We were turned away from the hospitals while she was visibly seizing and told she was fine. They said it was “normal” and to be honest Lucy’s diagnosis has been terrifying and hard on our family as a whole including her siblings. Especially the older siblings. I truly believe there is a reason Lucy chose us. We don’t want to just help her. We want to reach and help so many others.

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Lucy’s First Blog

“Otherwise, I’ll fall apart. I’m going to fall apart. I am falling apart.” ― Tabitha Suzuma, Forbidden And just like that our world completely changed. One day the pieces will come back together. For now, meet Lo. You will learn in a different post why she is...

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Become A Volunteer

Lucys nonprofit is always looking for volunteers to help with a variety of tasks. If you’re passionate about our cause and want to volunteer your time and skills, wed love to hear from you. Please contact us today!

Looking for Resources

It’s important to have reliable resources to turn to for information & support. That’s why we’ve compiled a list of resources that we recommend. We’ll continue to update this list, so be sure to check back often.