Our Story & Mission
Our daughter Lucy was born May (2019) and she was born with a rare neurological disorder that causes severe life threatening seizures. Her particular disorder is so rare that we are only aware of approximately a few hundred other children world wide with it. Lucy is only one of a few that is without full symptoms and this has given me so much hope.
I hope to advocate in all the ways possible for as many kids possible in Colorado. My dream is to make this a Nation Wide Nonprofit. For now we are serving families here in Colorado. We were turned away from the hospitals while she was visibly seizing and told she was fine. They said it was “normal” and to be honest Lucy’s diagnosis has been terrifying and hard on our family as a whole including her siblings. Especially the older siblings. I truly believe there is a reason Lucy chose us. We don’t want to just help her. We want to reach and help so many others.