Lucy’s Hemimegalencephaly Journey: Supporting Rare Warriors Through Swag

Dear friends and family,

We’ve been overwhelmed by the outpouring of support and inquiries about Lucy’s Hemimegalencephaly Journey “Swag.” We’re thrilled to announce that we’re now slowly rolling out our merchandise through a partnership with Printful. This means that every purchase you make not only spreads awareness but also contributes directly to Lucy’s Warrior Foundation, with an average profit/donation of $4 to $5 per item.

Our journey began with Lucy, our beloved daughter, who faces the challenges of hemimegalencephaly with unwavering courage. Through her strength and resilience, she has become the face of our nonprofit, which aims to support not only her but also other Rare Warriors and their families facing similar battles.

As we embark on this venture, our goal for 2024 is to extend our support to our first few families. At a minimum, we aim to pay it forward to at least two families, providing them with the resources and assistance they need. Every purchase you make brings us one step closer to achieving this goal and making a tangible difference in the lives of others.

We’re working tirelessly to expand our product line and finalize our website to make the shopping experience seamless for you. By the end of May, we hope to have all our products launched and our website up and running smoothly. This timeline coincides with an upcoming fundraiser this summer, where we aim to gather even more support and resources for our cause.

Your continued support, whether it’s through purchasing merchandise, spreading awareness, or simply sending love and encouragement, means the world to us. Together, we can make a meaningful impact in the lives of Rare Warriors and their families, ensuring they feel supported, empowered, and loved every step of the way.

So, happy shopping, dear friends and family! Your purchases not only provide you with meaningful merchandise but also contribute to a cause that is close to our hearts. Let’s continue to spread awareness and love for Lucy and all the Rare Warriors out there.

With heartfelt gratitude,

Lucy’s Team